Our Team Fundraising Page

Thank you for visiting our team page! Every 15 minutes, a baby in this country is born with a congenital heart defect, making CHDs America's most common birth defect. The Congenital Heart Walk is dedicated to raising funds to support The Children's Heart Foundation's mission: to advance the diagnosis, treatment, and prevention of CHDs by funding the most promising research.

Will you join us? By supporting our team or joining us in our walk, you're supporting research that will help save and improve the lives of babies born, and children and adults living, with CHDs. Thank you!

 

James's Story

James was born on March 8, 2021, with Pulmonary Atresia with IVS and ASD.  His team at Children's Hospital of Pittsburgh was ready for him the second he was born and were hopeful they could make the necessary repairs to his heart in the cath lab on March 12, 2021.  Unfortunately, there was a more complex issue that needed to be done for the best outcome so he had his first open heart surgery on March 16, 2021, for a BTT shunt.  He dealt with those repairs beautifully and went home on April 16th, 2021.  With his growing heart needing a more permanent repair, he went back into the cath lab and had another open heart surgery on August 16th, 2021 for the Glenn procedure.  He had some complications from that surgery including a paralyzed diaphragm which required another surgery to repair just a week after. After that surgery, he really bounced back and started to heal with the loving help of the entire staff, especially all of his favorite nurses!  Since then, James has been healthy and happy!  His cardiologist, Dr. Rachel Torok has high hopes that he will be able to stick with the Glenn anatomy for a while instead of the usual prognosis of a couple of years.  We'll continue to celebrate every milestone and every healthy day with our heart warrior, Super James.  

Without the research that foundations like this provide, we would not have been in a place to know about James's condition before he was born or even how to repair it.  The human heart is capable of so much and with the money raised for this foundation, we hope to give the opportunity we have to love James to other families out there.  Thank you!

 

Grab some "Super James" apparel too!  t-shirtscapetote You can use code: SUPERJAMES10 for 10% off too! *a portion of the proceeds will go toward our team!

 

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Recent Activity

Our Supporters

  • Kelsey Closen September 2023 $103.00
  • Maria Spezialetti June 2023 $75.00
  • Jennifer Grubb June 2023 $55.00
  • Jennifer Grubb June 2023 $25.00
  • Erin Rupert Go Super James!!! So happy we are friends and neighbors! June 2023
  • Daniel Rosenberg May 2023 $257.50
  • Aaron Rohlfing Here we go Super James!!! May 2023 $200.00
  • Gretchen Burton So happy to support Super James and this lifesaving research!!! Love, Tom and Gretchen February 2023 $154.50
  • Kelsey Closen September 2023 $103.00
  • Julia Brenner Baby James is so strong! Always an advocate for the advancement of medicine and technology to improve the quality of life and condition of those little ones living with Pulmonary Atresia with IVS and ASD. Julia loves you James! May 2023 $103.00