Our sweet Khloe was diagnosed in the womb with a narrow aortic arch and congenital heart disease. Upon birth, she was admitted to Children’s Hospital of Orange County (CHOC) for specialized care. Due to her tiny size, at just 3 weeks old Khloe was flown to San Francisco for emergency open heart surgery at UCSF Benioff Children’s Hospital. Dr. Reedy and his team successfully performed open heart surgery on our baby girl while she weighed only 2 pounds 9 ounces.

After recovering from surgery, Khloe was flown back to continue her NICU care. She was growing stronger, gaining weight, breathing on her own, and learning to take a bottle so she could finally come home. Then suddenly, everything changed. Khloe became critically ill, and it was discovered she had pulmonary stenosis and pulmonary artery hypertension so severe there was no cure.

Here is our story, our reason why…

As her parents, we would like to thank every single person who has walked this journey with us, supported us, became our village, and donated to a cause so deeply meaningful to our hearts. We share Khloe’s story to bring awareness, advocate for congenital heart disease research, and hopefully one day help find a cure so families do not have to endure these painful journeys.

I lost my Khloe, Twin A, at just 3 months old due to her heart condition. I will forever be a heart mom, honoring my heart angel, Khloe, by continuing to advocate in her memory, raise awareness, and support research efforts in hopes that other families will never have to experience the heartbreak we have endured.

It is beyond heartwarming to see Khloe impact so many lives in her short 101 days of life. Knowing that Khloe’s Cause will continue changing the lives of children with CHD in her honor means more to us than words can ever express.

XOXO,

Team Khloe's Cause